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2018 Nomination Recipient: Julian

2018 Nomination Recipient: Julian

2018 Nomination Recipient: Julian

Julian, 10, has cerebral palsy and Lennox-Gastaut Syndrome, a rare and severe form of epilepsy. He had brain damage at birth and started having daily seizures when he turned 4. He has been on multiple medications to control his seizures, having tried and failed 15 pharmaceutical drugs by the time he was 5-years-old.

His parents found that CBD (cannabididiol) greatly reduces his seizures, allowing him to live a greater quality of life. Julian went from having 20 to 30 seizures a day down to 1 to 2 a day on CBD oil. In addition to minimizing his seizures, the CBD improves his cognition and allows him to attend school and interact with his peers. He is on two pharmaceutical medications in addition to CBD oil, and still endures daily seizures.

He absolutely loves interacting with his peers, playing ball, playing with his dogs and cats, looking at animal books, watching movies, and playing with cars. He is a happy boy full of joy that has a smile that lights up a room. While he has been on CBD oil for nearly five years, the life-saving medication has become too costly for his family as it is not covered by insurance.

His parents have been paying out-of-pocket for the CBD oil, and are thankful for the help so they can continue to give Julian medication that helps his seizures and allows him to enjoy life.